The next February 28, 2013 is the World Rare Disease Day and the Spanish Federation of Rare Diseases (ERDF), in coordination with the European Organization for Rare Diseases (EURORDIS), has launched an awareness campaign. In addition, there will be a celebration in Madrid Solidarity Race next March 3, 2013 in favor of FEDER.
The race is celebrated in the Cottage and all people with the desire to have fun and have fun for a good cause can participate. Maria Tomé is the coordinator of the Awareness Campaign and indicates that “This race constitutes a magical day of dreams and illusion. It is a very familiar activity and everyone who wants to can participate. "In addition, this year children can also participate in the small road that will have a distance of 700 meters. Registration costs 3 euros with t-shirt and gift medal.
We remember that a disease is considered rare because it affects a small number of people, less than 5 per 10,000 inhabitants. It is estimated that in Spain there are more than 3 million people with rare diseases.
Above is the poster of the race with all the details and information on Row 0 solidarity.
In addition and in order to train, inform and transfer the importance of the union of forces in this area, activities are organized for patient associations, media, civil society, national administration, schools, etc. Total, More than 300 entities in Spain participate in World Rare Disease Day Organizing more than 120 activities throughout Spain.
And it is that these actions are very important for everyone, also for health professionals to know the symptoms and signs characteristic of rare diseases, since their diagnosis is hindered by the fact that they do not appear homogeneously in all patients and show in different degrees of involvement.
