The fourth edition of the charity cycling march will take place next Sunday "Illusion Pedals", by the hand of Stop Sanfilippo and NetApp for a good cause: raise funds for the investigation of the treatment of Sanfilippo syndrome.
The march will take place in Madrid, in the Navalcarbón Meadow (Las Rozas), and will have two routes: one for athletes of about 30 kilometers and another circular of 5 kilometers ideal to do with the kids and which will take three laps, although it can be abandoned at any time.
In addition, the whole family will have fun, because there will be games for the little ones, snack after the march and other surprises. Hopefully it is very good weather!
Remember that Sanfilippo Syndrome is a rare and devastating disease, neurodegenerative and genetic, which affects children from birth, and causes death during adolescence.
"Stop Sanfilippo" is a private Foundation whose mission is to promote research in order to get a cure for this terrible childhood disease, and we have already talked about it on other occasions, because they have been carrying out various beneficial acts for this purpose.
We hope that "Illusion Pedals" Be a success and a festive meeting place next Sunday, October 20. The minimum donation to participate is 15 euros for the marches and the races start at 10 am the long and 11 the short circuit.
Official Site | Pedals of illusion 2013 In Babies and more | February 28, World Rare Disease Day
